This morning, we packed up Izzy, my parents and mother in law, and we all headed out to Izzy’s school, where she will be starting in August. We did this to give the grandparents a better understanding of the school and why we’ve decided to have Izzy go there. While at the school, we were able to see the classrooms, ranging for infant classrooms, to 5 year old classrooms, in action. We saw kiddos on the playground, at music therapy, sensory stations, father days activities, having snacks…we got to see many beautiful children, being children. Happy children.
ECI-early childhood intervention, has been a big help. We have two therapist who come out twice month to work with Izzy. They are great. They connect with not only Izzy, but with me. I am grateful.
However, there are times, like today, where I can’t help but feel overwhelmed. Yes, Izzy is doing great. She’s rolling, sitting on her own, likes to stand, wants to crawl, has taken to solids, she’s energetic, she’s teething, she’s cooing and “talking”. Basically she’s on track. Which is wonderful. But there’s a but. I hate that there’s a but. At least in my head. BUT, is it enough? I pray it is.
More than anything in this world I want my daughter to be successful. I want her to have every opportunity out there. So I ask myself, are we ding enough? Yes, we are hands on, but could we be doing more? Frankly, I often forget she has DS, until it’s time for therapy. Am I doing her a disservice by “forgetting”? I hope not.
I have high expectations for Izzy. Even before she was born and we were told all this, I had, and still do have, high expectations for her. DS isn’t who she is. It’s what she has. It makes things challenging. It requires us to be positive. It requires us to go that extra step. It requires us to leave our comfort zone behind. We read to her. We sing. We play. We talk all time. We hold her. We let her problem solve. We pray. We ask questions. Lots of them. Are we doing everything we can to assure our daughter is successful. I pray so.
What I know is that with God’s grace and guidance, we will do everything we can to assure that our Izzy is successful.
Today our Izzy is eight months old.
I can’t help but think back to eight months ago.
Seeing our Izzy today, you wouldn’t have guessed she was was ever in the hospital. She’s 18lbs 8oz, has two teeth, Nuisance and Pest, breaking in. She’s sitting by herself, rocks on her hand and knees/feet, she’s making all sorts of sounds, eating yummy food and countless other things which frankly I wasn’t sure she’d be able to do due to DS.
You can’t tel me there isn’t a God. You can’t tell me miracles don’t exist.
Now if she’d only say, “ma”
My Izzy is eight months old.
God is good.
I love videos like this. They are simple, to the point, and allow people with Down Syndrome to speak for themselves.
“The abilities of an individual with Down Syndrome are directly in relation to what we expect from them.”
We’re More Alike Than Different – The Documentary
Mami and Papi have very high expectations for Izzy… Very High. But she should have even higher expectations for her parents getting her in a position to succeed. And WE are up for the challenge.
There is no map to where we are going, but with God and our family by our side we will never reach a dead end.